Showing posts with label One Thousand Gifts. Show all posts
Showing posts with label One Thousand Gifts. Show all posts

Wednesday, May 20, 2015

Rain of Grace


Ann Voskamp says…

"Grace holds you when everything else falls apart — and whispers that everything is really falling together."



It's always the little things.  The Birthday Cards that arrive, unexpectedly in the mail.  She is the coolest of friends from Texas, and she loves us big.  The boys, with neither of their Grandma's with us any longer, have felt the empty space in a tangible way.  They still hovered by the mail box, hoping for a little Birthday acknowledgement.  The day after they stopped looking anymore, cards arrived, from Texas.   I may have been the giddiest one of all.  There is an ache within me, for me to fully know, the boys will celebrate birthdays.  That they will be loved, and cherished.  That the community that has surrounded us, will keep them at their center.


Last Tuesday I met with the Neurosurgeon, Dr. Adam Jackson.  He shook hands with us as he walked into the room, swiftly striding over to the computer on the desk next to me.  


No moments of small talk.  No getting to know one another, conversationally.  He jumped in, with the hardest words, right away.

"Well, you are stuck between, a rock, and a hard place, aren't you?"

"Blink.  Blink."

I've stopped being able to absorb more sadness.  I'm detached in a way, but facing forward, listening to the stark reality of his words.

All I can do is stare blankly, and blink.


I'm sitting rather precariously on my seat, observing.  Wondering where he is about to take me.  He is going to go on, despite anything I might say.  So I sit.


He flips on the screen and my scan springs to life in mere moments.


He begins to tell me, anatomically, where my tumors reside.  As he begins pointing out the structures of my brain using terms I have vaguely heard before, I suddenly flash back to Graduate School.

The professor was Dr. Dahlhouse.  He was short statured, but had a booming voice.   He had moved from Jamaica, and his accent was thick.  He was funny and warm.   He was passionate about the human body.  And despite our limited time together,  he wanted us to have an in-depth look at the complexity of the human body and how it all worked.  So our Anatomy & Physiology book, was a Med School book,  used at UND.  

I literally used to sit with a dictionary, trying to decipher the words being used in each sentence of that book.   The amount of sheer memorization in that class, made it feel like a full time job, on top of which, we had to decipher some of Dr. Dahlhouse's accent. 


Suddenly, Dr. Jackson, wheels back in his chair.

I'm jolted, back instantly, in the exam room.  Dr. Jackson is no longer verbally dissecting my brain.  

Instead, he is asking me a question.

"What do you want to do with your life?"

"Blink?"


"Because if you want to sit in a boat, and fish all day long.  I might be able to help you."

"We can make a long incision along your hairline, and peel it all back.  Then we'd make the hole and drill through the bone and resect whatever we can of the tumors."  

I'm suddenly feeling more Grey's Anatomy, and where is Dr. McDreamy anyway?  

But Dr. Jackson goes on.

"But if you want to talk.  Or form sentences.  Or use words.  Or think.  Then this is probably not the procedure for you." 

"Blink, blink, blink."


"Because you look like you're highly functioning right now."

And since the first rule of medicine is to "do no harm."  Then I shouldn't do surgery on you.  Its far too risky.

"As is any needle aspiration of the tumor for a biopsy.  Too risky." 

"Blink."


Do you know how hard it is for me as a brain surgeon,  to tell you I can't do surgery on you?"  

Do I know…?  No, I know nothing.

"Blink."


"I'll tell Dr. Foster I think we should watch and wait. " 



"But if you should decide you do want to proceed, than please feel free to contact me again."


Double blink.




"Grace loves us when we are at our darkest worst and wraps us in the best light."  
~Ann Voskamp


A week later, and I still don't have any answers.  And neither do the doctors, so far.  I've tried to do some internet research, but I've clicked away each time, because "darkest, and worst" are in bold face everywhere I turn.  


So I turn back to Ann Voskamp, who is  prose-worthy, as well as praise worthy.

And she says:

"You don’t have to know how to do it all.
You just have to choose to be all here, right where you are.

His grace meets you in the moment — and you will miss it if you are worrying about future moments.
Lock your thoughts in this moment — and you get to live the freest of all."






























Friday, April 22, 2011

If I'm being honest, it really sucked... and learning how to trust.

If I 'm being honest, I'd have to tell you what a dark day I had yesterday.  Half of it anyway.  It really sucked, and I don't even like that word, but thats how yucky it was.

But before I start, let me say this, "I am fine.  Really.  I'm doing well.  But its not all sunshine and smiles.  So please read with the understanding, I am only being real and giving you the Dr. Phil "tell it like it is" account of the occasional bad day I have."  









The first half of my day was actually really good.  I went to Target and gathered ideas to inform the Easter Bunny on what he should bring to our house.  And I had lunch with my neighbor Darla, which we never get to do.

But then I went to get the mail and couldn't help ripping into the pretty envelope from the Mayo Clinic.  And there it was in black and white.  My report.  First from the nurse practitioner, Nurse Ratched, oops, did I really just call her that?  Next, from Dr. P.

Let me start off by saying, there was absolutely nothing new in that report.  I've heard it all, and read most of it before.  So I am not sharing anything new.  But, the cyclone of emotion that settled over me was astonishing even so.  Maybe it was the rainy day, on top of more gloomy days already.  Maybe I was just in a mood.  It wasn't like me, but I have to say it WAS me yesterday.

In reality, I completely get what "they" (the medical personnel) have to do.  When you go for a second opinion, they tell you what they think from A to Z.  And I am only at letter B or even C, with my own Doctor. We aren't skipping ahead to Q, R, or S.  But at the Mayo Clinic, they needed to remind me of the whole alphabet, A to stinkin'  Z.  Cause Z?  Really stinks.

So my eyes  skimmed right over the "Patient is a pleasant woman, and seems to be coping well...," and lasered in on the more ominous language.


"Palliative care."  Bam, it cuts through me like a nail on the cross.


"Comfort measures."  Bam.  I recoil with the sensation of pierced skin.


"Incurable."  Bam...  sears me to the core.




For the second time, I want to shout at them, "But I am alive, and I want to live.  Can you not obviously see my two boys alive in my eyes, whom I breathe for?  My husband, my Superman who is every and all things to me?  I am not cancer.  I am alive in spite of the cancer.  Please see ME."


I am a sobbing, weeping, mess, leveled on the floor.


I can't help but think of Easter.  Its Good Friday today.  Why has the word "good" never seemed ironic before to me?  I think I have always pushed past the sadness of Christ on the Cross, to the joy and celebration of the Resurrection.  I've never invited in, the pain of the cross.

How did Jesus feel, washing the feet of Judas who would betray him?  My thoughts circle and swirl around the events of Good Friday.

I sat with it all day yesterday.  My very best "virtual couch" friends were by my side.

"Please God, give me the shift in perspective I need to go back to Hope."

Robin encourages me to read chapter 8 of One Thousand Gifts, and as I do, my faith restores piece by fragile piece.

Ann's words again, a balm to my weary soul... she reminds me "Do not let your hearts be troubled. Trust in God; trust also in me."  (John 14:1)  Bible verse after verse she reminds me.

Her words, now pierce me, "I've got to get this thing, what it means to trust... because I can't fill with joy until I learn how to trust."

The last nail hits especially hard and truthful... Bam.  




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To show you I am okay, look what my friend Roxane  brought me this morning "hope" in the pewter cross on the book above.  Roxane blogs at Peace Garden Writer, and Peace Garden Mama, and its worth a visit to her blogs.  Thanks for a wonderful morning, Roxane!

As I go to snap the photo of the cross, I realize the renewed feeling I have, hope- restored.

Have a Blessed Easter everyone!









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When you get lucky

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